|
|
Bone marrow donors please share your experiences
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
I got a call this morning from a bone marrow registry saying I am a potential match for someone. Although I more or less know the medical procedure I wanted to hear from people that have actually gone through the process to see what they have to say.
I think I will be going in this Thursday for confirmatory typing. Have you or a family member been a donor? What can I expect for the next few days/weeks?
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Addicted to MacNN
Join Date: Mar 2006
Location: California
Status:
Offline
|
|
|
|
|
|
|
|
|
|
|
Baninated
Join Date: Mar 2008
Status:
Offline
|
|
(
Last edited by lexapro; Apr 1, 2008 at 06:53 PM.
Reason: please delete this post)
|
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
thanks for the links brassplayersrock, I just sent in my consent for blood work an hour ago so things should start moving now.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Mac Elite
Join Date: Apr 2001
Location: Minneapolis, MN
Status:
Offline
|
|
Funny, my wife works for the National Marrow Donor Program - most likely the organization that called you.
|
|
|
|
|
|
|
|
|
Clinically Insane
Join Date: Dec 2000
Location: Caught in a web of deceit.
Status:
Offline
|
|
Are you getting apheresis or a marrow harvest?
If the latter, come back and tell us how much it hurts.
Seriously though, I applaud you for doing this.
|
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
Originally Posted by awaspaas
Funny, my wife works for the National Marrow Donor Program - most likely the organization that called you.
I actually joined the registry called Gift for Life. It was founded originally to help Jews find donors more easily since we share more genetic material the same way an African is more likely to be a match for another African. All of the registrants are entered into the national database as well so I don't even know if the patient is Jewish or not. I read on their site that they arranged more donations to non-jews than jews (4500 compared to 1500) simply because there is a larger pool of non-jews needing donations.
Eug: I don't know which method they plan to use, assuming I am a high enough match, but I'll let you know. Having two oncologists in the family means they won't be able to downplay the pain.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
Update: I'm going for the blood draw next Monday since the kit won't get to the lab by me by tomorrow.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
Well I went for the confirmatory typing test this morning and was told the results would take between 2 and 60 days to come in. and I thought waiting for the cable guy from 9-5 was a wide window.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Dedicated MacNNer
Join Date: Jun 2001
Location: San Antonio, Texas
Status:
Offline
|
|
I was a 5 of 6 match a few years ago. It was disappointing not to be ultimately selected. A friend of mine has done it. Very proud of her (and you).
|
|
|
|
|
|
|
|
|
Banned
Join Date: Mar 2005
Status:
Offline
|
|
SSharon:
Risking playing into the possibility of you looking for praise, I have to say that you are to be commended for this if you do it.
|
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
Originally Posted by freudling
SSharon:
Risking playing into the possibility of you looking for praise, I have to say that you are to be commended for this if you do it.
nah, that's really not my style. I was hoping to hear stories like that of quesera to see what it is like waiting days or possibly weeks for the results only not to be chosen.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Grizzled Veteran
Join Date: May 2001
Location: Ca
Status:
Offline
|
|
"Your a good Man Charlie Brown"
|
With some loud music + a friend to chat nearby you can get alot done. - but jezz, I'd avoid it if I had the choice---- If only real people came with Alpha Channels.......:)
AIM:xflaer
deinterlaced.com
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Mar 2003
Location: In the South
Status:
Offline
|
|
I have always wondered what the pain is like for real and not various google searches.
|
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
Originally Posted by KeriVit
I have always wondered what the pain is like for real and not various google searches.
a coworker of mine, who has never had this procedure, speculated that it must be like the pain he feels in his leg which he previously broke and now has a rod and pins through. I indirectly know a few people that have donated and the worst I hear is lower back pain and some soreness walking.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Mar 2003
Location: In the South
Status:
Offline
|
|
I wonder if that pain might be worse in my back since I have a titanium cage in it...
|
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
Originally Posted by KeriVit
I wonder if that pain might be worse in my back since I have a titanium cage in it...
Ouch. I hope you don't feel discomfort from it on a daily basis. I have titanium screws in my jaw but I don't feel a thing.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Mar 2003
Location: In the South
Status:
Offline
|
|
Naw, trust me, any twinge of pain is miniscule to the pain I lived with before the surgery.
|
|
|
|
|
|
|
|
|
Professional Poster
Join Date: Jan 2003
Location: Teaneck, NJ
Status:
Offline
|
|
Sadly, I just got the call that I'm not a close enough match to donate.
Thanks for the links and support and good luck to the patient.
|
AT&T iPhone 5S and 6; 13" MBP; MDD G4.
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
Forum Rules
|
|
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
|
HTML code is Off
|
|
|
|
|
|
|
|
|
|
|
|